Lifestyle & Trends - Community

Rare diseases: Increasing awareness for better patient outcomes

Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the journey to a correct diagnosis may take years, and once they receive an accurate diagnosis, it can be extremely difficult for these patients to find accurate information on their disease. One of the first things patients do is research everything they can about their illness, including connecting with someone who is also living with the disease, and learning their options for disease management and treatment.

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Five reasons Asian Americans should get tested for hepatitis B

More than 1 million Americans have a lifelong, or chronic, infection of hepatitis B. This includes one out of every 12 Asian Americans. If you or your parents were born in Asia or the Pacific Islands, the Centers for Disease Control and Prevention (CDC) recommends that you get tested for hepatitis B.

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Technology can turn $25 into a family giving tradition

Technology has been connecting families for generations. The invention of the phone let us hear voices of loved ones far away, and the creation of the Internet helped us to see them. Today, those same technologies that we've used to bring our families closer together are helping us to connect with and support families who are worlds apart. In doing so, the very concept and experience of "gifting" and philanthropy is being transformed.

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Igniting the conversation about rare diseases

Each year, people across the world are invited to join together to raise awareness about rare diseases. Unlike more common conditions such as diabetes and breast cancer, many of these diseases, as well as the people affected by them, are not recognized by their own awareness initiatives throughout the year.

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Nearly 1 in 10 Americans lives with a rare disease

Did you know that the same number of people die each year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And yet IPF, a rare and debilitating disease that causes permanent scarring of the lungs, is still relatively unknown.

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